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roberta mikles

As I read the above, I am reminded of how many patients I have communicated with who could no longer do the job they were trained for, however, had a great desire to work. Many of these patients, with retraining, or assistance, could have found another job that would have supported their self-esteen and made them feel more productive as well as supporting a positive emotional status. This leads further to yet another problem. Many of these patients, who have lost their ability to work develop various emotional problems as they enter into a new way of living. Often, these feelings can be transferred on to other situations, they can become depressed, become concerned about things they normally would not, etc etc etc. These behaviors are often misinterpreted by staff and the patient is labeled as a 'problem', disruptive, etc... Therefore, even more important for staff to fully understand that which the patient experiences. Being able to work, for those that have the desire is critical and providers must become more alert to such and take action.
Roberta Mikles
Director, Advocates 4 Quality Safe Patient Care

David O. Stapel

I have been an hemodialysis patient for 27 years.
For 17 of those years, I worked 30-40 hours per week. Maintaining a dialysis schedule and working full time was not easy. But the feelings of normalcy and accomplishment are priceless!

When I started dialysis in 1983 I just "assumed" I would continue to work. No one told me any different. (And anyway, I needed the money!)

Back in those days quite a few dialysis patients in my unit worked. This is not so true today. A very small percentage, if any, work.

I think back in the 80's, dialysis facilities accommodated working patients. My center would run patients till 10PM. (I ran from 6PM to 10PM, Tues.,Thurs. and Sat.)

Working gives dialysis patients meaning and purpose in their lives, not to mention much needed cash!

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